Supporting patients & families with rare & undiagnosed genetic conditions, and connecting healthcare providers, researchers & patients for healthier lives.
- The Wilhelm Foundation
- NORD - National Organization for Rare Disorders
- Comitato "I Malati Invisibili" Onlus
- CORD - Chinese Organization for Rare Disorders
- FEDER - Federation Espanola de Enfermedades Raras
- EURORDIS - Rare Diseases Europe
- Rare & Undiagnosed Network
- D'Genes - Association of rare diseases of Murcia
- Rare & Undiagnosed Network (RUN)
- Pancyprian Association for Rare Genetic Diseases "Unique SMILES”
- Organization of Rare Disease India
- Organization IndoUSRare
If you are a patient or a patients organization ad you want to participate to the UDNI activities please contact us or go to the dedicated section "How to Apply"