Patients Associations

Supporting patients & families with rare & undiagnosed genetic conditions, and connecting healthcare providers, researchers & patients for healthier lives.

  1. The Wilhelm Foundation
  2. NORD - National Organization for Rare Disorders
  3. Comitato "I Malati Invisibili" Onlus
  4. CORD - Chinese Organization for Rare Disorders
  5. FEDER - Federation Espanola de Enfermedades Raras
  6. EURORDIS - Rare Diseases Europe
  7. VSOP 

If you are a patient or a patients organization ad you want to participate to the UDNI activities please contact us.

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