Supporting patients & families with rare & undiagnosed genetic conditions, and connecting healthcare providers, researchers & patients for healthier lives.
- The Wilhelm Foundation
- NORD - National Organization for Rare Disorders
- Comitato "I Malati Invisibili" Onlus
- CORD - Chinese Organization for Rare Disorders
- FEDER - Federation Espanola de Enfermedades Raras
- EURORDIS - Rare Diseases Europe
If you are a patient or a patients organization ad you want to participate to the UDNI activities please contact us.