< Newsletter Archive
May 2018 - N° 2

Research

On Sickle Cell Anemia, Hearing, and Beta-Thalassemia: journals piled around my desk

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Funding Opportunities

Funding Opportunities

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Funding Opportunities

Funding opportunities for patient organizations

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Research

PAST EVENTS: UDNI Workshop at RE(ACT) Congress

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Conference

PAST EVENTS: 9th European Conference on Rare Diseases and Orphan Products

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Conference

UPCOMING EVENTS: 6th Conference of Undiagnosed Diseases Network International

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Research

UDNI SURVEY: Response from participating countries

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Patients

Letter from a swedish mum to UDNI's Newsletter

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loghi

UDNI Comunication Group: Domenica Taruscio (Chair, Italy), Rumen Stefanov (Bulgaria), Stephen Groft (USA), Helene and Mikk Cederroth (Sweden), William Clyde Partin (Atlanta, GA)
Contributors in this newsletter: Domenica Taruscio, Marco Salvatore, Agata Polizzi, Maria Chiara de Stefano, Tiziana Grassi (Italy), William Gahl (USA), Rumen Stefanov (Bulgaria), Stephen Groft (USA), Helene and Mikk Cederroth (Sweden), William Clyde Partin (Atlanta, GA), Dusica Babovic (Rochester, Minnesota; Jacksonville, Florida), Vajira H.W Dissanayake (Sri Lanka), Kaan Boztug (Wien)
Edited by: Marco Salvatore, Agata Polizzi, Andrea Vittozzi, Gianluca Ferrari (Italy)


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