UDNI SURVEY: Response from participating countries


A short survey has been developed by Communication Group in order to collect information and news from all UDNI participating Countries. It includes information regarding i) brief description of the “Clinical Center” or “Services on undiagnosed rare diseases”; ii) past (six months) and future/upcoming events related to undiagnosed rare disease; iii) Relevant scientific publications and iv) grant award to announce funding for projects and/or received grants from other organizations/institutions for undiagnosed rare diseases research.

The Communication Group decided to publish 3 selected contribution per Newsletter. Here the first 3 contributes by Mayo Clinic (Arizona — Scottsdale/Phoenix, Florida — Jacksonville, Minnesota — Rochester), Human Genetics Unit (Sri Lanka) and The Vienna Center for Rare and Undiagnosed Diseases (CeRUD) are reported. The Contributions from other Countries will be published in the upcoming Newsletters (3 per Newsletter).

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