< Newsletter Archive
April 2023 - N° 1

A dedicated day to all living with an Undiagnosed Rare Disease.
Some events from all around the Globe…

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Events

Undiagnosed Diseases Network Foundation Promotes Access and Equity for Undiagnosed and Ultra-Rare Disease Patients

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Events

Rare Disease Grand Rounds

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Patients

Undiagnosed day 2023

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Events

Forgotten & Unseen: A Global Perspective on Life as an X-Linked Carrier

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Research

Call for experts: Strategic Advisory Group of Experts on In Vitro Diagnostics 2023 (SAGE IVD)

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UDNI Comunication Group: Domenica Taruscio (Chair, Italy), Rumen Stefanov (Bulgaria), Stephen Groft (USA), Helene and Mikk Cederroth (Sweden), William Clyde Partin (Atlanta, GA). Vincenzo Nigro (Italy), Bela Melegh (Hungary), Paul Melmeyer (USA), Ugur Ozbek (Ungary), Shinya Yamamoto (USA), Vanessa Boulanger (USA), Manuel Posada (Spain), Marco Salvatore (Italy)



Contributors to this newsletter: Domenica Taruscio, Marco Salvatore, Gianluca Ferrari (Italy)

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