Events
INTERNATIONAL SCHOOL ON RARE DISEASES
From 2 November 2026 to 20 January 2027, ICORD in collaboration with UDNI and KOS Study Center will launch the International School on Rare …
Undiagnosed Diseases Network Foundation Promotes Access and Equity for Undiagnosed and Ultra-Rare Disease Patients
Washington, DC – Today, a group of undiagnosed and ultra-rare diseases patients and their family members, medical providers, and advocacy partners announced the launch of the Undiagnosed Diseases Network Foundation (UDNF). The organization aims to improve access to diagnosis, research, and care for all with undiagnosed and ultra-rare diseases.
For more information visit udnf.org