Rare Disease Day at NIH 2022
Rare Disease Day® takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the …
INTRODUCTION AND OBJECTIVES
The International Course “Training on strategies to foster solutions of undiagnosed rare disease cases” is part of a series of training activities proposed by the EJP RD. EJP RD is a European Commission funded project (grant agreement No 825575, 2019 – 2023) with the goal to create a comprehensive sustainable ecosystem, allowing a virtuous circle between research, care and medical innovation.
This International course is part of Work Package 14 of the EJP RD, “Training on Data Management & Quality”; Task 14.3 “Training on strategies to foster solutions of undiagnosed rare disease cases”. WP and Task Leader: Dr. Claudio Carta, ISS.
Course Director: Dr. Domenica Taruscio, ISS.
For more information:
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