UDNI SURVEY: Response from participating countries (December 2018)

A short survey has been developed by Communication Group in order to collect information and news from all UDNI participating Countries. It includes information regarding i) brief description of the “Clinical Center” or “Services on undiagnosed rare diseases”; ii) past (six months) and future/upcoming events related to undiagnosed rare disease; iii) Relevant scientific publications and iv) grant award to announce funding for projects and/or received grants from other organizations/institutions for undiagnosed rare diseases research.

In attachment you will find the contributions.

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Patient organizations becoming members of the UDNI. We are excited to announce the opportunity for patient organizations around the world to officially join the Undiagnosed Disease Network …

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