A short survey has been developed by Communication Group in order to collect information and news from all UDNI participating Countries. It includes information regarding i) brief description of the “Clinical Center” or “Services on undiagnosed rare diseases”; ii) past (six months) and future/upcoming events related to undiagnosed rare disease; iii) Relevant scientific publications and iv) grant award to announce funding for projects and/or received grants from other organizations/institutions for undiagnosed rare diseases research.
Here 2 contributes by Acibadem Mehmet Ali Aydinlar University, Rare Disease and Orphan Drug Research and Application Center AND School of Medicine. Istanbul and King Chulalongkorn Memorial Hospital and Chulalongkorn University. Bangkok, Thailand