Patients Associations

Supporting patients & families with rare & undiagnosed genetic conditions, and connecting healthcare providers, researchers & patients for healthier lives.

• The Wilhelm Foundation
• NORD - National Organization for Rare Disorders
• Comitato "I Malati Invisibili" Onlus
• CORD - Chinese Organization for Rare Disorders
• FEDER - Federation Espanola de Enfermedades Raras
• EURORDIS - Rare Diseases Europe
• VSOP 
• D'Genes - Association of rare diseases of Murcia
• Rare & Undiagnosed Network (RUN) 
• Pancyprian Association for Rare Genetic Diseases "Unique SMILES”
• Organization of Rare Disease India
• Indo US Organization for Rare Diseases
• Syndrome Without A Name (SWAN)
• UNIAMO - Federazione Italiana Malattie Rare
• ALAPA - Alianza Argentina de Pacientes
• Lázaro Esclerosis Múltiple
• Rare Diseases Ghana
• Fupier
• Ceska ascociace pro vzacna onemocneni

If you are a patient or a patients organization ad you want to participate to the UDNI activities please contact us or go to the dedicated section "How to Apply"