eventsICO

UPCOMING EVENTS (10/07/2018)

ICORD 2018 StockholmOn 20-21 September, 2018 in Stockholm, Sweden will be held the 13th Annual ICORD Meeting. ICORD is an International Network connecting people with awareness on problems associated with rare diseases and orphan drugs, such as researchers, academics, industry, patients, patient …

comitatoICO

Letter from a patient: Deborah Capanna

To have symptoms, to feel pain, to be awareness to be sick without getting a diagnosis, that is the drama of hundreds of thousands people in the world, invisible to Medicine, to Institutions and to Society.I am 44, and I live with an invisible illness since many years to now. I was just a little …