Funding Opportunities

Further funding opportunities for Rare Diseases Rare diseases are life-threatening and chronically debilitating diseases. They are a priority of research funding in the European Union. In the European Union, a disease is considered rare when it affects not more than 1 person in 2000. More than 1 …

PAST EVENTS: UDNI Workshop at RE(ACT) Congress

On 7-10th of March 2018 in Bologna, Italy was held UDNI Workshop at RE(ACT) Congress. In a few session there were represented programs, projects, difficulties and objectives that undiagnosed diseases face. A joint project was also presented between Italy and the US setting goals such as: …

UDNI SURVEY: Response from participating countries

A short survey has been developed by Communication Group in order to collect information and news from all UDNI participating Countries. It includes information regarding i) brief description of the "Clinical Center" or "Services on undiagnosed rare diseases"; ii) past (six months) and …

Letter from a swedish mum to UDNI's Newsletter

I am a proud mom of four amazing children. My youngest daughter Liv is now two and a half years old and suffers from an undiagnosed braindisease.   I understood early that our Liv was different from other babies, but the health care did not agree with me. Not until she was about ten months …